Chatting with Avery

Avery's First Card!

With help from Daddy, Avery made her very first card!

Some of Ave's Current Faves

She almost lost her mind as I created this post!

Caillou

Olivia

Max

Boots the Monkey

Elmo

Binoo

MRI Results

We went to the neurologist today to get the results of Avery's brain MRI (we don't have the cardiac MRI results yet). In a nutshell, she did not have a dramatic brain injury indicative of a stroke (and therefore it would have not been related to any of her operations). Instead, she had brain damage on both the left and right sides (the left was more predominate which explains the cerebral palsy on just the right side) that was indicative of in-utero and preoperative damage due to decreased oxygenation of the brain ventricles.

On the left side in particular, the brain damage is right where the ventricles near the stem which in all kids is their motor function location. Any other spots of brain damage that were found were too diffuse to pin to any other cognitive, motor or behavioural delay. And it was these spots (more than those of obvious motor function) that Avery will most likely be able to "re-map" since a child's brain is so much more elastic than an adult's.

From the mouth of Ave...

"I am a pig lips - oink, oink."

"There's a rooster (in Cora's breakfast restaurant) - cock-a-doodle doo!" (and very loudly)

"I don't like the mountains." as we drive through them for hours.

Avery (Loudly) Plays Hockey with the Big Kids

Avery's Artwork - A Heart Person!

Morning Cuddles

They all cuddled around Ave this morning...quite the motley bunch, no?

Cute Aveism

"Need lolly with ice cream" to refer to a dilly bar.

Did You Know that Avery is Best in the World?

About 2 1/2 years ago, Charlotte made up her own little song to a very young Avery (~six months old).



Now they have both got together for the "re-mix".