Sunday, October 9, 2016

This is me now!

I am 7 and a half years old.

My First Day as a Grade 3'r

Games I Like to Play...

...and you can play them too
  1. roblox
  2. palace pets
  3. makeup stuff
  4. leps world
  5. geometry dash
  6. minecraft

you need to download them too

Thursday, April 25, 2013

Cardiology update

Ave did real well at the cardiologist yesterday. Her prognosis in regards to her pulmonary stenosis remains the same (that is mild to moderate narrowing of the arteries). Besides that, her doctor is pleased with her development. And we were very pleased that she handled it so well. The early morning and all those activities did tucker her out so she had a quick snooze in the nanny's car on the way to school! 30 minutes later, she was up and raring to go!

Sunday, October 14, 2012

Avery's First Card!

With help from Daddy, Avery made her very first card!

Tuesday, May 22, 2012

Some of Ave's Current Faves

She almost lost her mind as I created this post!

Boots the Monkey

Wednesday, April 4, 2012

MRI Results

We went to the neurologist today to get the results of Avery's brain MRI (we don't have the cardiac MRI results yet). In a nutshell, she did not have a dramatic brain injury indicative of a stroke (and therefore it would have not been related to any of her operations). Instead, she had brain damage on both the left and right sides (the left was more predominate which explains the cerebral palsy on just the right side) that was indicative of in-utero and preoperative damage due to decreased oxygenation of the brain ventricles.

On the left side in particular, the brain damage is right where the ventricles near the stem which in all kids is their motor function location. Any other spots of brain damage that were found were too diffuse to pin to any other cognitive, motor or behavioural delay. And it was these spots (more than those of obvious motor function) that Avery will most likely be able to "re-map" since a child's brain is so much more elastic than an adult's.